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020 _a9783319174167
024 7 _a10.1007/978-3-319-17416-7
_2doi
050 4 _aRB155.65
_b2015 EB
100 1 _aMinor, Jessica.
_995286
_0Local
245 1 0 _aInformed Consent in Predictive Genetic Testing :
_bA Revised Model
_cby Jessica Minor.
260 _aCham, Switzerland
_bSpringer
_c2015
300 _a1 recurso en línea (VII, 232 páginas) :
336 _aTexto
_btxt
_2rdacontent
337 _aelectrónico
_bc
_2rdamedia
338 _arecurso electrónico
_bcr
_2rdacarrier
505 0 _aIntroduction -- Predictive Genetic Testing -- The History and Components of Informed Consent -- Revised Model of Informed Consent -- Application of the Revised Model -- Conclusion.
520 3 _aThis important book proposes revising the current informed consent protocol for predictive genetic testing to reflect the trend toward patient-centered medicine. Emphasizing the predictive aspect of testing, the author analyzes the state of informed consent procedure in terms of three components: comprehension of risk assessment, disclosure to select appropriate treatment, and voluntariness. The book's revised model revisits these cornerstones, restructuring the consent process to allow for expanded comprehension time, enhanced patient safety, greater patient involvement and autonomy, and reduced chance of coercion by family or others. A comparison of the current and revised versions and case studies showing the new model in real-world applications add extra usefulness to this resource. Â{u026E}cluded in the coverage: The science behind PGT. Understanding genetic risks and probability. The history of informed consent. Revised model of informed consent: comprehension, disclosure, voluntariness, patient safety. Applications of the model in DTC and pleiotropic genetic testing. Implementation of the revised model, and assessing its effectiveness. Â{u0060}milestone in the bioethics literature, Informed Consent in Predictive Genetic Testing will be of considerable interest to genetic counselors, medical and bioethicists, and public health professionals.
710 2 _aSpringerLink (Online service)
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942 _2lcc
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650 7 _aServicios de salud materno-infantil
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_2embne
_9429059
650 0 _9139059
_aPsicoterapia
_0
650 7 _aGenética humana
_0
_2embne
_9140562
856 4 0 _uhttps://go.openathens.net/redirector/universidadeuropea.es?url=https://link.springer.com/book/10.1007/978-3-319-17416-7
_zAcceso a este recurso digital (usuarios Universidad Europea de Madrid)
907 _a.b12910247
_b10-10-17
_c10-02-16
988 _aSpringer_Medicine_2015
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