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008			230824s2023 sz | fo |||| 0|eng d
020			_a9783031256028
024	7		_a10.1007/978-3-031-25602-8 _2doi
040			_aES-MaUEC _bspa _cES-MaUEC _dES-MaUEC
050		4	_aRD129.8 _b2023 EB
245	0	0	_aPatients' Lived Experiences During the Transplant and Cellular Therapy Journey : _bHarvest and Hope _cedited by Jean Coffey, John M. Hill Jr, Thomas Long, Elizabeth B. McGrath
250			_a1st ed. 2023
264		1	_aCham _bSpringer International Publishing _c2023
300			_a1 recurso en línea
336			_atexto _btxt _2rdacontent
337			_aelectrónico _bc _2rdamedia
338			_arecurso electrónico _bcr _2rdacarrier
505	0		_aForeword -- Introduction -- Creating a Patient-Centered Case Study -- Part A. The Autologous Stem Cell Transplant Journey -- Chapter 1. Hope and Determination -- Chapter 2. The Hugger -- Chapter 3. Spaces in Between -- Part B. The Allogeneic Stem Cell Transplant Journey -- Chapter 4. Saving Superman -- Chapter 5. Brothers in Arms -- Chapter 6. Letting Go -- Chapter 7. Another Ode to August -- Chapter 8. Dr's Orders -- Chapter 9. Am I Dreaming -- Chapter 10. With Every Sunrise I'll Do Better -- Part C. The CAR T-Cell Journey -- Chapter 11. Second Chances -- Epilogue: Saying Goodbye, Lasting Reflections and New Horizon.
520			_aThe book was envisioned by bedside nurses caring for transplant and cellular therapy patients as a way to teach novice nurses and health care colleagues about the care required for this complex patient population. The nurse authors recruited an oncology nurse practitioner, transplant physician, nurse scientist and expert in medical humanities and health studies to join the project team. The dedication of the team and the willingness of the patients to contribute to the project, has led to a unique case study approach focused on the lived experience of patients and care partner(s) during the transplant/cellular therapy journey. The case studies are unique in that they encompass a qualitative narrative developed using Interpretive Phenomenological Analysis (IPA) and the inclusion of the individual's actual medical and nursing care from their health record. At every step along the trajectory of the illness, the medications and care received are described, interspersed with the voice of the patient and care partner(s) sharing their experiences. The chapters follow the individual patients and their care partner(s) through all phases of their illness. The interviews were conducted, and case studies written by the bedside clinical nurses. Visual art and prose created by patients and care partner(s)s are included in the chapters. The book also includes an introduction written by the nurse authors, a methods chapter on the inclusion of IPA in a case study, and poignant epilogue. The premise of nursing support for survivorship is woven throughout the book, highlighting how giving back aids in recovery identity. This book is the work of clinical nurses devoted to improving care for their patients by sharing the patient stories with others. It introduces a unique approach to the case study which could be replicated and applied to any diagnosis.
988			_aSpringer_Medicine_2023
650		7	_2embne _9140365 _aTrasplante de órganos _xCuidados de enfermería
856	4	0	_uhttps://go.openathens.net/redirector/universidadeuropea.es?url=https://doi.org/10.1007/978-3-031-25602-8 _zAcceso a este recurso digital (usuarios Universidad Europea de Madrid)
942			_2lcc _cLE
998			_b06/2024 _dz _eb _zSI