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008			220831s2022 sz a o |||| 0|eng d
020			_a9783030976064
024	7		_a10.1007/978-3-030-97606-4 _2doi
040			_aES-MaUEC _bspa _cES-MaUEC _dES-MaUEC
050		4	_aRC935.S67 _b2022 EB
100	1		_aGarrido Cumbrera, Marco _eautor _4aut _4http://id.loc.gov/vocabulary/relators/aut _9685779
245	1	0	_aAxial Spondyloarthritis : _bPatient-Reported Impact in Europe _cby Marco Garrido-Cumbrera, Victoria Navarro-Compán, Christine Bundy, Raj Mahapatra, Souzi Makri, Carlos J Delgado-Domínguez, Pedro Plazuelo-Ramos, Denis Poddubnyy
250			_a1st edition 2022
264		1	_aCham _bSpringer International Publishing _c2022
300			_a1 recurso en línea (XXI, 109 páginas) _b42 ilustraciones a color
336			_atexto _btxt _2rdacontent
337			_aelectrónico _bc _2rdamedia
338			_arecurso electrónico _bcr _2rdacarrier
347			_aarchivo de texto _bPDF
505	0		_aExecutive Summary -- About the Authors -- Introduction -- Objectives.-Methodology -- Demographic Profile of Survey Respondents -- Diagnosis -- Physical Health -- Psychological Health -- Social Support -- Healthcare -- Habits and Lifestyle -- Employment Status and Productivity -- Fears and Hopes -- IMAS European Survey Strengths and Limitations -- Glossary of Terms.
506	0		_aOpen Access
520			_aThis open access book provides an overview of the International Map of Axial Spondyloarthritis (IMAS) project -focusing on Europe-, a wide-ranging, multi-disciplinary collaboration between academic groups, Health Care Professionals (HCPs), patient organizations and Novartis. IMAS was conceived to improve knowledge of Axial Spondyloarthritis (axSpA) and raise awareness of its heavy burden globally. By asking more than 2,000 patients across Europe about the impact of axSpA on multiple aspects of their life, the full extent of this disease was investigated from a direct patient perspective. This allowed a unique understanding of how living with axSpA affects the daily lives and well-being of patients, and how this varies between European countries. Axial Spondyloarthritis: Patient-Reported Impact in Europe highlights opportunities for progressing quality patient care to be applied to health services globally. HCPs, policy makers and patients will find this book to be an indispensable resource for improving the understanding of this chronic condition, including patients' clinical outcomes, the protection of those at risk of psychological distress, and the economic burden on patients and society.
988			_aSpringer_Medicine_2022
650		7	_2embne _9170416 _aColumna vertebral _xEnfermedades
700	1		_aNavarro-Compán, Victoria _eautor _4aut _4http://id.loc.gov/vocabulary/relators/aut _9685780
700	1		_aBundy, Christine _eautor _4aut _4http://id.loc.gov/vocabulary/relators/aut _9685781
700	1		_aMahapatra, Raj _eautor _4aut _4http://id.loc.gov/vocabulary/relators/aut _9685782
700	1		_aMakri, Souzi _eautor _4aut _4http://id.loc.gov/vocabulary/relators/aut _9685783
700	1		_aDelgado-Domínguez, Carlos J. _eautor _4aut _4http://id.loc.gov/vocabulary/relators/aut _9685784
700	1		_aPlazuelo-Ramos, Pedro _eautor _4aut _4http://id.loc.gov/vocabulary/relators/aut _9685785
700	1		_aPoddubnyy, Denis _eautor _4aut _4http://id.loc.gov/vocabulary/relators/aut _9685786
776	0	8	_iPrinted edition: _z9783030976057
776	0	8	_iPrinted edition: _z9783030976071
776	0	8	_iPrinted edition: _z9783030976088
856	4	0	_uhttps://go.openathens.net/redirector/universidadeuropea.es?url=https://doi.org/10.1007/978-3-030-97606-4 _zAcceso a este recurso digital (usuarios Universidad Europea de Madrid)
942			_2lcc _cLE
998			_b12/2022 _dz _eb _zSI