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008			220917s2022 sz | s |||| 0|eng d
020			_a9783031049354
024	7		_a10.1007/978-3-031-04935-4 _2doi
040			_aES-MaUEC _bspa _cES-MaUEC _dES-MaUEC
050		4	_aRC71 _b2022 EB
245	0	0	_aDiagnoses Without Names : _bChallenges for Medical Care, Research, and Policy _cedited by Michael D. Lockshin, Mary K. Crow, Medha Barbhaiya
250			_aFirst edition 2022
264		1	_aCham _bSpringer International Publishing _c2022
300			_a1 recurso en línea (XX, 227 páginas) _b11 ilustraciones, 10 ilustraciones a color
336			_atexto _btxt _2rdacontent
337			_aelectrónico _bc _2rdamedia
338			_arecurso electrónico _bcr _2rdacarrier
347			_aarchivo de texto _bPDF
505	0		_aPart I - What is a diagnosis -- 1. Chasing My Cure: Lessons learned from my rare illness -- 2. A Pragmatic Approach to Diagnostic Categorization -- 3. How diagnoses are assigned -- 4. Toward Molecular Diagnoses for Autoimmune Rheumatic Diseases -- Part II - Purposes of diagnosis -- 5. Diagnostic Uncertainty in Drug Development -- 6. Confronting the Inevitability of Diagnostic Uncertainty Across Multiple Legal Domains -- 7. The FDA and the Drug Development Process -- Part III - Assigning diagnoses -- 8. Diagnosis of Systemic Lupus Erythematosus in the Age of Precision Medicine -- 9. The Impact of Antinuclear Antibody Testing on the Naming and Misnaming of Disease -- 10. In the Box or Out of the Box -- 11. Ever Evolving Disease Classification Criteria for Clinical Trials and Studies: The Case of Systemic Lupus Erythematosus -- 12. Prognosis: A framework for clinical practice when patients have 'symptoms with no diagnosis' -- 13. When the Illness Has No Name: Focus on Clinical Trials in Systemic Lupus Erythematosus -- 14. The Epidemiology of Systemic Lupus Erythematosus -- Part IV - Uncertainty -- 15. Managing and tolerating diagnostic uncertainty -- 16. Is there a textbook for non-textbook patients? -- 17. The Changing Role Of Uncertainty In Physician-Patient Relationships -- 18. Syndromes in Search of a Name: Disorders of Consciousness, Neuroethics & Nosological Humility -- 19. Reflections on the Conference by a Physician-Patient -- 20. Clinical Ambiguity in the Intelligent Machine Era (Treats Breaks and Discharges) -- 21. Shame, Name, Give Up the Game? Three Approaches to Uncertainty.
520			_aDoctors, patients, investigators, administrators, and policymakers who assign diagnoses assume three elements: the name describes an entity with conceptual or evidentiary boundaries, the person setting the name has a high degree of certainty, and the name has a consensus definition. This book challenges this practice and offers an alternative to assigning diagnoses: quantitating diagnostic uncertainty in personal and public medical plans. This book offers the stakeholders' views participating in a workshop, sponsored by the Barbara Volcker Center/Hospital for Special Surgery, taking place in April 2020, about uncertain diagnoses. Chapters examine the circumstances in which diagnosis names are "unassignable", either because patients do not fit within diagnostic "boxes" or because health abnormalities evolve and change over time. In addition, the book deconstructs the processes of diagnosis and explores how different stakeholders used diagnosis names for various purposes. In examining pertinent questions, the book offers a roadmap to achieving consensus definitions or including measures of uncertainty in personal care, research, and policy. Diagnoses Without Names: Challenges for Medical Care, Research, and Policy is an essential resource for physicians and related professionals, residents, fellows, and graduate students in internal medicine, rheumatology, and clinical immunology as well as investigators, administrators, policymakers.
988			_aSpringer_Medicine_2022
650		7	_2embne _9138439 _aDiagnóstico
700	1		_aLockshin, Michael D. _eeditor literario _4edt _4http://id.loc.gov/vocabulary/relators/edt
700	1		_aCrow, Mary K. _eeditor literario _4edt _4http://id.loc.gov/vocabulary/relators/edt
700	1		_aBarbhaiya, Medha _eeditor literario _4edt _4http://id.loc.gov/vocabulary/relators/edt
773	0		_tSpringer Nature eBook
776	0	8	_iPrinted edition: _z9783031049347
776	0	8	_iPrinted edition: _z9783031049361
856	4	0	_uhttps://go.openathens.net/redirector/universidadeuropea.es?url=https://doi.org/10.1007/978-3-031-04935-4 _zAcceso a este recurso digital (usuarios Universidad Europea de Madrid)
942			_2lcc _cLE
998			_b09/2022 _dz _eIG _zSI