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020			_a9783030986971
024	7		_a10.1007/978-3-030-98697-1 _2doi
040			_aES-MaUEC _bspa _cES-MaUEC _dES-MaUEC
050			_aR726.8 _b2022 EB
245	1	0	_aEnd of Life and People with Intellectual and Developmental Disability : _bContemporary Issues, Challenges, Experiences and Practice _cedited by Roger J. Stancliffe, Michele Y. Wiese, Philip McCallion, Mary McCarron.
250			_afirst edition 2022
264		1	_aCham _bSpringer International Publishing _c2022
300			_a1 recurso en línea (XXXIV, 519 páginas) _b4 ilustraciones, 1 ilustración a color
336			_atext _btxt _2rdacontent
337			_acomputer _bc _2rdamedia
338			_aonline resource _bcr _2rdacarrier
347			_aarchivo de texto _bPDF
505	0		_aChapter 1: Current and New Developments in Death, Dying and End-Of-Life Care Policies and Practices -- Chapter 2: Experience of End-of-Life Issues by People with Intellectual Disability -- Chapter 3: Suicide and Autism: A Lifespan Perspective -- Chapter 4: Advance Care Planning with and for People who have Intellectual and Developmental Disabilities -- Chapter 5: Decision-Making at the End of Life: Challenges and Opportunities for People with Intellectual and Multiple Disabilities in Residential Homes in Germany -- Chapter 6: How People with Intellectual Disability are Dying and Implications for Quality Care -- Chapter 7: Living and Dying Well with Dementia -- Chapter 8: Building shared end-of-life supports and cross-training for hospice/palliative and intellectual disability services providers -- Chapter 9: Supporting People with Intellectual Disability at End of Life: Moral Distress among Staff Caregivers During COVID-19 -- Chapter 10: Accessible Funerals and People with Intellectual Disability -- Chapter 11: End-of-Life Doulas and People Living with Intellectual and Developmental Disability -- Chapter 12: Palliative and End-of-Life Care for Children with Intellectual Disabilities -- Chapter 13: End-of-life Issues and Support Needs of People with Profound Intellectual and Multiple Disability -- Chapter 14: The Process of Dying -- Chapter 15: Use of Do-Not-Resuscitate Orders -- Chapter 16: Positioning the Issues: An Agenda for Future End-of-life Research, Policy and Practice -- Chapter 17 End-of Life Resources.
520			_aRoger J. Stancliffe, PhD FAAIDD FIASSIDD is Professor Emeritus, University of Sydney, Australia. His research aims to make a difference in the lives of people with intellectual disability. He co-edited a special journal issue on end-of-life, is past editor of the Journal of Intellectual & Developmental Disability, and received the AAIDD Research Award. Michele Y. Wiese, PhD MAPS FASID is Adjunct Fellow, School of Psychology, Western Sydney University, Australia. She is also Honorary Senior Research Fellow at the University of Sydney, and Fellow of the Australasian Society of Intellectual Disability. Dr Wiese is consulting editor to three international peer-reviewed journals. Philip McCallion, PhD ACSW FAASWSW FIASSIDD FGSA Director/Professor, School of Social Work, Temple University focuses on caregiver support, dementia, palliative care and service systems. He is co-founder/co-principal investigator/co-applicant of the Intellectual Disability Supplement to the Irish Longitudinal Study on Aging; and National Consultant on Intellectual Disabilities and Dementia, U.S. National Alzheimer's and Dementia Resource Center. Mary McCarron, PhD MA BNS RNID RGN FTCD is Professor of Ageing and Intellectual Disability at Trinity College University of Dublin, Ireland, and Executive Director of the Trinity Centre for Ageing and Intellectual Disability and the National Intellectual Disability Memory Clinic. She is Principal Investigator of The Intellectual Disability to the Irish Longitudinal Study on Ageing- IDS TILDA, and has led extensive longitudinal research in Ireland and internationally on ageing, dementia and end-of-life issues for people with an intellectual disability. This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning.
988			_aSpringer_Psychology_2022
650		7	_2embne _9154418 _aCuidados paliativos
700	1		_aStancliffe, Roger J. _eeditor literario _4edt _4http://id.loc.gov/vocabulary/relators/edt
700	1		_aWiese, Michele Y. _eeditor literario _4edt _4http://id.loc.gov/vocabulary/relators/edt
700	1		_aMcCallion, Philip _eeditor literario _4edt _4http://id.loc.gov/vocabulary/relators/edt
700	1		_aMcCarron, Mary _eeditor literario _4edt _4http://id.loc.gov/vocabulary/relators/edt
776	0	8	_iPrinted edition: _z9783030986964
776	0	8	_iPrinted edition: _z9783030986988
776	0	8	_iPrinted edition: _z9783030986995
856	4	0	_uhttps://go.openathens.net/redirector/universidadeuropea.es?url=https://doi.org/10.1007/978-3-030-98697-1 _zAcceso a este recurso digital (usuarios Universidad Europea de Madrid)
942			_2lcc _cLE
998			_b09/2022 _dz _ep _zSI