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008			210722s2021 sz a s |||| 0|eng d
020			_a9783030733032
024	7		_a10.1007/978-3-030-73303-2 _2doi
040			_aES-MaUEC _bspa _cES-MaUEC _dES-MaUEC
050		4	_aRC924.5.L85 _b2021 EB
245	0	0	_aOutcome Measures and Metrics in Systemic Lupus Erythematosus _cedited by Zahi Touma
250			_aFirst edition 2021
264		1	_aCham _bSpringer International Publishing _c2021
264		4	_c2021
300			_a1 recurso en línea (XIV, 418 páginas) _b28 ilustraciones, 23 ilustraciones a color
336			_2rdacontent _aTexto _btxt
337			_2rdamedia _aelectrónico _bc
338			_2rdacarrier _arecurso electrónico _bcr
347			_aArchivo de texto _bPDF
505	0		_a1. Introduction: Metrics and Psychometric Properties -- 2. Domains Measured in Systemic Lupus -- 3. Measuring Disease Activity -- 4. Measuring Damage -- 5. Measurements in Lupus Clinical Trials -- 6. Application of Measurements in Clinical Practice -- 7. Patient-reported Outcomes in Lupus -- 8. Health-related Quality of Life in Lupus -- 9. Assessment of Cognitive Function in Lupus -- 10. Assessment of Depression and Anxiety in Lupus -- 11. Assessment of Fatigue and Pain in Lupus -- 12. Emerging Concepts in Lupus: Sleep, Frailty, and Others -- 13. Activities and Participation for Patients with Lupus.
520			_aSystemic Lupus Erythematosus (SLE) is a chronic autoimmune disease that manifests with a myriad of clinical and laboratory features. The assessment of SLE is comprehensive and includes different core set domains; disease activity, damage, health-related quality of life, adverse events and economic impact. This comprehensive book is focused on the instruments and outcome measures utilized in the assessment of SLE. It targets different audiences including physicians, scientists/researchers and different health professionals interested in learning about the art of measurement in SLE. The book highlights the importance of measurement in the assessment of SLE in a clinical settings, research and clinical trials. Each of the chapters provide a systematic approach to the instruments utilized in the assessment of a specific construct in SLE (e.g., disease activity, fatigue, etc.) and incorporate a comprehensive coverage of disease specific and disease generic measures. It also discusses different patient-reported outcomes that are crucial to reflect patient perceptions of their health condition and cover constructs such as fatigue, pain, anxiety and depression, cognition, frailty, and many others.
988			_aSpringer_Medicine_2021
650		7	_2embne _9667662 _aLupus eritematoso sistémico
700	1		_aTouma, Zahi _eeditor literario _4edt _4http://id.loc.gov/vocabulary/relators/edt
776	0	8	_iPrinted edition: _z9783030733025
776	0	8	_iPrinted edition: _z9783030733049
856	4	0	_uhttps://go.openathens.net/redirector/universidadeuropea.es?url=https://doi.org/10.1007/978-3-030-73303-2 _zAcceso a este recurso digital (usuarios Universidad Europea de Madrid)
942			_2lcc _cLE
998			_b02/2022 _dz _ek _zSI