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020			_a9783030273750
024	7		_a10.1007/978-3-030-27375-0 _2doi
040			_aES-MaUEC _bspa _cES-MaUEC _dES-MaUEC
050		4	_aRJ249 _b2020 EB
245	0	0	_aChildren's Palliative Care : _bAn International Case-Based Manual _cedited by Julia Downing
250			_a1st ed. 2020.
264		1	_aCham _bSpringer International Publishing : _bImprint: Springer _c2020
300			_a1 recurso en línea (XXVIII, 290 páginas) _b33 ilustraciones, 15 ilustraciones a color
336			_2rdacontent _aTexto _btxt
337			_2rdamedia _aelectrónico _bc
338			_2rdacarrier _arecurso electrónico _bcr
347			_atext file _bPDF _2rda
490	0		_aMedicine (Springer-11650)
505	0		_aChapter 1. Introduction to children's palliative care and serious health related suffering, along with how to use this case based manual -- Chapter 2. The need for and gaps in provision of children's palliative care globally -- Chapter 3. Universal Health Coverage and Serious Health related Suffering (SHS) -- Chapter 4. Children's palliative care across a range of conditions, settings and resources -- Chapter 5. The importance of good holistic assessment -- Chapter 6. Communication to children and their families -- Chapter 7. Pain assessment and management -- Chapter 8. Respiratory care -- Chapter 9. Gastrointestinal symptoms -- Chapter 10. Fatigue -- Chapter 11. Nutritional support -- Chapter 12. Psychological care and distress -- Chapter 13. Spiritual care -- Chapter 14. Social and cultural support -- Chapter 15. End of life care -- Chapter 16. Supporting the family at the time of death -- Chapter 17. Anticipatory grief and bereavement support -- Chapter 18. Perinatal and neonatal palliative care -- Chapter 19. Supporting the adolescent and young adult -- Chapter 20. Managing ethical issues -- Chapter 21. Collaborative working and use of national, regional and international networks -- Chapter 22. Empowering the team through education -- Chapter 23. Integrating research into care -- Chapter 24. Conclusion -- Chapter 25. Index.
520	3		_aThis manual enables individuals working in children's palliative care (CPC) globally to learn through engaging real-world cases. The aim is to provide a clinical case-based resource that is globally relevant and accessible to those working in CPC. Drawing on case histories from around the world that reflect key issues and elements of CPC, it provides a practical approach grounded in experience. It addresses multidisciplinary care in the management of children and their families; discusses cases from an international perspective, and shares examples from a variety of countries, utilising cases across a range of ages and conditions, demonstrating holistic care. It represents the first case-based manual on global CPC and is endorsed and promoted by the International Children's Palliative Care Network (ICPCN). Children's palliative care is a rapidly developing field, both in the UK and internationally. The provision of CPC varies considerably, with provision often being insufficient, and over 65% of countries having no recognised CPC service provision whatsoever. As such, while there are an estimated 21.6 million children who require palliative care, in many areas of the world, CPC is poor or non-existent, and children are treated like little adults without their distinctive needs being recognised or understood. There is also a dearth of literature on CPC, hence this clinical case-based manual fills a gap in the market, and is aimed at a global audience, making it a unique text in the field.
988			_aSpringer_Medicine_2020
650		7	_2embne _9672578 _aCuidados paliativos para niños
700	1		_aDowning, Julia. _eeditor. _4edt _4http://id.loc.gov/vocabulary/relators/edt _0http://id.loc.gov/authorities/names/n00122733 _1http://viaf.org/viaf/13550153
710	2		_aSpringerLink (Online service) _0http://id.loc.gov/authorities/names/no2005046756 _1http://viaf.org/viaf/148105729
776	0	8	_iPrinted edition: _z9783030273743
776	0	8	_iPrinted edition: _z9783030273767
856	4	0	_uhttps://go.openathens.net/redirector/universidadeuropea.es?url=https://doi.org/10.1007/978-3-030-27375-0 _zAcceso a este recurso digital (usuarios Universidad Europea de Madrid)
942			_2lcc _cLE
998			_b07/2020 _dz _eIG _zSI